Today has been in and out (fun times). However, I ended up really wanting a slice of pizza tonight. We still had a frozen pizza in our deep freezer, so I got my wish. It didn't stay down…but it was completely worth it! Steve and I have it down to a science now…instead of Lettermans “Will It Float?” we play “Will it digest.” Really…we are starting to have fun with it…it's been all laughter in our house today. We know, we are weird, but we like it that way!
Debra – I DID try the ginger ale and I really think its the carbonation that's just setting me on edge. However, tomorrow I'm trying green tea with honey and ginger. I wasn't even thinking about trying that one tonight.
I thought I would briefly (as promised) outline the new plan of attack outlined by my medical team.
Starting Tuesday I will begin a new type of chemo that is basically more aggressive towards the tumor and less empathetic with the offset of CIDP side effects. This means I will be getting a full dose of the new chemo, IVIG and then a combined IVIG with a different type of chemo for the CIDP. A lot to take in I know, but it's basically combining what I've already been doing with a different, in-your-face chemo. Sounds like a real knockout doesn't it? My infusion days will continue to be every Tuesday and Thursday. I rotate between two facilities, pending on who is on cardio duty. Funny thing is, I now feel comfortable at either place…everybody knows me!
Starting Monday, February 27th I'll go through 2 more rounds of guided radiation, along with my infusion days. March 5th will be my last round of radiation and March 8th will be my last day for chemo before a break (length to be determined by MRI results).
In summary…this week is JUST the new chemo on Tuesday and Thursday.
The following 2 weeks are radiation on Mondays and infusion days on Tuesday and Thursday.
Then a much needed break…I'm headed to the beach.
I don't know about you, but I'd really like March 8th to be my last chemo day…ever. Sound like a plan? So, I like to put dates with all my requests to God…that way I can mark down later how He responded. This is a first that I actually included a due date with the request. I really do believe in this little mustard seed of faith I've been carrying with me. I really do believe that all things (not just the things we think might be possible, or think we deserve, or think that we can do) I said I believe I can do ALL THINGS through Him who gives me strength. I've seen God move in amazing ways through this journey and like I've been saying…”He ain't done yet.”
Plan B starts Tuesday. Glad you are here with me friends and prayer warriors. Get ready for another crazy ride!
Sent from my iPad